Motherhood is complex. It only makes sense that Mother’s Day brings up a lot of complicated thoughts and emotions for people—joy, sadness, anger, confusion. This complexity doesn’t mean it’s not worth acknowledging. It’s just important to embrace a Mother’s Day message that honors a variety of experiences and is sensitive to how this day impacts
Originally published by Pittsburgh Region. Next Is Now. I am grateful for the opportunity to share Gus Gear’s story with their readers and talk about our relationship with Pittsburgh’s startup community. Chronic illness doesn’t define my son, Gus, but it has shaped and defined my life. Over 15 years ago, I moved with my children
While keeping a chart at home for your medically complex kid isn’t necessarily required, it is a powerful tool that makes it simple to spot trends or quantify issues. It allows you to be data driven, and speak a language your child’s medical team will find easy to understand. It prevents personal opinions and emotions
Show your stripes for rare disease awareness! That’s right — this month is all about raising public, medical, and political awareness about rare diseases, the people they affect, the damage they cause on a large scale, and new treatments and research. Not only is it critical to let more people know about diagnostics and treatments
As a caregiver, it can be difficult to maintain relationships outside of the person(s) you’re caring for. Even that relationship can become strained by the dynamics and expectations of “taking care.” The same is true of friendships, romantic relationships, and relationships with your family. Caregiving changes your identity and leads to a fundamental shift in
If you’re raising a child with medical complexities, it can be overwhelming to realize or remember just how many medical supplies you need to have inside your home at all times. Not only that, you need to have backups, and backups for your backups, all ready to go at a moment’s notice. Whether or not