A decade ago, I was a mom with a very sick child. My son’s health challenges required a product that did not exist, so with the spark of an idea and a sewing machine, I set out to solve the problem. I never imagined that what I created to help my son would grow into
Kids with chronic illnesses, complex conditions, or disabilities have faced and will continue to face challenges, but what offers them a better chance to just be kids than summer camp? Summer and year-round programs designed specifically with complex medical conditions in mind do exist, and they offer a respite from doctors’ offices, hospitals, and the
Many of us have fond memories of growing up with a pet, and while valid reasons exist for not bringing home an animal for your medically complex child, for those who it’s possible, there are just as many wonderful reasons why you should. Animals have a therapeutic effect that comes from the mutual love and
Original article written by Abram’s Nation on Oct. 14, 2020 One of the important questions we hear is how to obtain insurance coverage for a safety bed. The Safety Sleeper has been covered in many states through Medicaid, Medicaid HMOs, Medical Waiver and private insurance. Each state can be different, so it is important to know the insurance
When we discuss children who are diagnosed with medically complex conditions, we often reflect on and consider the effect it has on the child’s parents’ lives. But parents are not the only ones whose lives are irrevocably altered by a complex diagnosis or disability. Siblings in these situations often feel an acute sense of stress
Advocating for a medically complex child means speaking up and communicating their needs—medical, educational, and emotional—to doctors, teachers, law makers, and even other family members. It is a full-time job in and of itself, and a very important one, as you well know. After all, you are your child’s spokesperson, first line of defense, and
