Resources and Information
Below are links to great websites for support, information and products. Do you have a link to share? Contact us with your suggestion!
The Oley Foundation
The Oley Foundation gives people information, tools, advice, and tips for living better on home IV and tube feedings. Visit the Oley Foundation website.
The Youth Rally
The Youth Rally, a summer camp operated by the Youth Rally Committee (YRC) strives to provide a positive support network that highlights independence and individuality as tools youths can use to regain confidence and a sense of belonging. The YRC is devoted to providing a positive atmosphere of support, learning, and personal growth for youths with bowel and/or bladder dysfunction. Visit the Youth Rally website.
Free, personalized websites that support and connect loved ones during critical illness, treatment, and recovery. Visit the Caring Bridge website.
MMIHS.org is a site dedicated to increasing awareness of Megacystis Microcolon Intestinal Hypoperistalsis Syndrome and providing support and resources for those affected by it. Visit the MMHIS website.
The Phoenix is America’s leading ostomy patient magazine providing colostomy, ileostomy, urostomy and continent diversion information, management techniques, new products and much more. Visit The Phoenix’s website.
The Safety Sleeper
The Safety Sleeper™ is a patented, FDA registered, fully enclosed bed system for children and adults with special needs. It is easily assembled / disassembled, and therefore portable. A number of customization options such as multi-functional access holes for feeding tubes, pulse-ox sensors or monitors are available to further accommodate special needs. Visit the Safety Sleeper website.